Tuesday, January 7, 2014

Doubt

Michael has had his port for 5 years, 7 months and 28 days now or 2068 days in total. At an average infusion rate of 3 times every 7 days he has been stuck close to 900 times. 900 times of holding your breath and hoping for the best. Hoping that he doesn't feel the prick...hoping that you don't miss the port...hoping that his headache isn't an intercranial bleed...I digress. Mikey is doing well, no Mikey is doing very well. He doesn't have any target joints, he doesn't have an inhibitor, he can play "Hey Jude" on the piano... or at least he's working on it. That's why when he wakes up in the middle of the night complaining of a headache cooler heads normally prevail and say, "kids get headaches" give him some Tylenol and be done with it. But there's always that doubt, and the interrogation begins: Where does it hurt? Did you hit your head? Did someone else hit you on the head? Did you fall down? To which he replies, no, no, no, no. Let's see, his log said he was infused 36 hours ago...well, let's infuse him anyway, better safe than sorry. And that's that, he goes to sleep and you feel reasonably more confident that he will be happy and singing when he wakes the next morning.